Williams Syndrome Australia | Latest news & stories

In the news

Aug 2020

Alert 30th August 2020 - Annual Williams Syndrome Sausage Sizzle Picnic Day has been CANCELLED for the first time in 34 years due to COVID-19. If you have any questions or problems you need to discuss please ring. Keep well and stay safe.

Source: Mater Dei School, Kirkham Lane, Camden 10.30AM - 3.00PM

You will need to bring picnic chairs, eating utensils, plates, cups, a picnic rug, sunglasses, camera, hat and sunscreen. The kids often enjoy riding their bikes or playing ball.

RSVP one week before please email: dianne@geneticalliance.org.au or ring

Williams Syndrome Australia on 0439 431 256 ( 10am – 4pm Monday to Friday) with details of who will be attending and what dishes you may wish to contribute

Dec, 2019 The Stay Calm project is being led by Justin Chung, under the supervision of Dr Kate Woodcock, at the School of Psychology in the University of Birmingham, UK. This project aims to develop and evaluate an informant-report questionnaire, which will be used to assess the characteristics of emotional outbursts in more detail compared to existing measures. This will be a valuable tool for researchers and clinicians in future. Find out more

Aug, 2019 The purpose of the questionnaire is to gather experiences and knowledge about pain from people directly involved in adults with Williams, Prader-Willi, and Fragile X syndromes (such as family and Personal Support Workers). Sharing this information provides valuable insight and practical tools for dealing with pain. View details...