The purpose of the questionnaire is to gather experiences and knowledge about pain from people directly involved in adults with Williams, Prader-Willi, and Fragile X syndromes (such as family and Personal Support Workers). Sharing this information provides valuable insight and practical tools for dealing with pain. If possible, only members involved in adults (18 years and older) with a syndrome will be selected. Data will be collected anonymously and will therefore not require personal information such as name, gender, and date of birth. The questionnaire will be completed online.
Source: University Amsterdam