Aug 2016 | Luce Morley-Detjen talks about her lifelong focus on music. Her battle with Williams Syndrome has seen her gifted with wonderful song writing ability and an inspirational philosophy of how she sees life.Full story
Williams syndrome (WS) is not a disease. It cannot be caught and it cannot be cured. It's something that is uniquely part of the individual. The characteristics and medical issues that present themselves in WS are directly related to a set of missing genes on the 7th chromosome.
Even though raising a child with Williams syndrome may have certain challenges, most children with WS have wonderful, social, friendly, and endearing personalities. As adults, these amazing people often volunteer in the communities, making them a valuable asset to society at large.
Here are some stories of children and adults with Williams syndrome. If you have a story you'd like to share with your experience of Williams syndrome, please contact us.
May 2016 | Natasha Petrie, 33, is 1 in up to 10,000 people with Williams syndrome, a rare developmental disorder that affects many parts of the body.Full story
Jan 2014 | There's that wide grin that startled me in the beginning. Now, it melts my heart. It's true that she doesn't look just like me, but I can't imagine her looking any other way. Emmy is who she is, not who I am. Though, I'm told she'll develop much more of a family resemblance as she grows older. Everyone already says that she looks just like my husband.Full story
Mar 2012 | Natasha is now 29 and as her 30th birthday is looming at the end of the year. We are reaching yet another significant milestone and we have fears for the future and who will care for her. This is our (and her) story...Full story
Apr 2011 | Jessica's daughter, Isabelle, has Williams syndrome, a genetic disorder with a number of symptoms. Children with Williams are often physically small and frequently have developmental delays. But also, kids and adults with Williams love people, and they are literally pathologically trusting. They have no social fear.Full story