Williams syndrome (WS) is not a disease. It cannot be caught and it cannot be cured. It's something that is uniquely part of the individual. The characteristics and medical issues that present themselves in WS are directly related to a set of missing genes on the 7th chromosome.

Even though raising a child with Williams syndrome may have certain challenges, most children with WS have wonderful, social, friendly, and endearing personalities. As adults, these amazing people often volunteer in the communities, making them a valuable asset to society at large.

Here are some stories of children and adults with Williams syndrome. If you have a story you'd like to share with your experience of Williams syndrome, please contact us.




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Unexpected features

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Coping with a rare disorder

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A Life Without Fear